Dear Friend...
(This letter was originally posted on http://flash.lymenet.org)
Dear Friend,
I hope and pray that you get better. Lyme Disease and the co-infections (i.e. Babesiosis) are complicated issues. Please be assured that beginning your journey with a LLMD (Lyme Literate Medical Doctor) will be crucial to your health.
It may have been in the past you have had many symptoms and an excellent LLMD can help you with most if not all of the Lyme Disease issues. As time goes on, you will learn more and more about Lyme Disease (and the co-infections) and thus learn you’re about your body as well.
You will be able to see how everything relates and that understanding will help you. Be open to new ideas, and question how Lyme Disease works. Ask yourself," Does this relate to my illness?"
Don't ever quit. Believe in your doctors process. That is so important. Your symptoms and test results are your LLMD's map to your recovery. Little by little, like a castaway on an island, the clues unfold for you and your LLMD. The "ah ha's" begin, the feeling of awe as you move yourself out of this island and onto the land where you feel grounded. Be patient though, because like all lymies, we need a good LLMD to sort though all the complicated issues.
There may be times when you feel like you are over this thing. Your symptoms are crucial to your total healing. I have lived with denial about my disease, going back to work when I wasn't ready and getting sick again.
It also seems as though you could get more confused with too many answers from all kinds of help. Keep it simple. Know your body, step by step, and then let the healing begin. Know your LLMD, and look for one that has treated many cases of LD, some similar to yours.
As far as support goes, there is Lymenet, as Chazmyn mentioned in her letter. On Lymenet, you can gain additional information that can help you get better. Your LLMD is like a compass. Lymenet is similar to your friend who can direct you back to the main land.
As you read all the responses, perhaps your gut will help you too. A good LLMD, a good attitude about healing, and a solid patient history that your LLMD has about you is important. The true roadblocks will unfold by your testing results from reputable labs, your history, and known allergies. All this should come from one doctor. So reaching out is important - so you and your LLMD can find the
true "ah ha's" together.
As you and your LLMD begin to get grounded in the healing process, may you find that your healing is a miracle...little by little, step by step. And, by all means, keep saying, "I will get better."
Painted Rabbit (WA)